Whew. We made it. It honestly felt like it had been a month since my last infusion. These last treatments are D R A G G I N G.
My platelets were *just* high enough to have treatment today. I’m hoping they hold steady for the last three so there aren’t anymore delays... but if it happens it happens.
I had a moment of “how is this my life?” today while I was hooked up. It is still surreal.
I am hearing a lot about life after treatment and how hard it is, or can be. I’ve already begun to have anxiety around it. I mean right now I’m getting labs every other week and chemo. So I know someone is monitoring everything. After I’m done I will get a colonoscopy and then I will wait six months before my first scan. Which will bring “scaniety” with it. It’s just a lot to think about. I’m planning on resuming therapy and hopefully getting my husband and boys into some counseling to help process the trauma our family has been through. Usually there are groups our boys could participate in, but with COVID there’s nothing happening right now which is a real bummer
On another note- I’m planning celebrations galore. I already bought a blue feather boa to wear to my last day of infusion. I’ve already told people I want a giant sign and balloons and a cake and whatever else we can do. We are going to celebrate every milestone no matter how small. That’s just how we do it!